Patients & Families

News and stories for people affected by aortic dissection—patients, families, and carers. From personal experiences to support updates, this section offers insights, advice, and community highlights to help you feel informed, connected, and supported at every stage of the journey.

All (63) Patients & Families (17) Patient Stories (14) THINK AORTA® (9) Healthcare Professionals (11) Fundraising (6) Research (8)

Aortic Dissection Awareness Day UK 2026 - Save the Date!

Posted on 1st July 2025

Aortic Dissection Awareness Day UK 2026 will be on Friday 18th September 2026. Save the date.

Patients & charities an integral part of the 1st Edinburgh Aortic Summit

Posted on 30th June 2025

Aortic patients and their patient charities were an integral part of the inaugural Edinburgh Aortic Summit, held at the Royal College of Surgeons of...

Charity launches new Thoracic Aortic Aneurysm patient leaflet

Posted on 28th June 2025

Helping patients and families understand a life-altering diagnosis, in partnership with expert cardiologists. Aortic Dissection Awareness UK &...

Booking now open for Aortic Dissection Awareness Day UK 2025

Posted on 2nd April 2025

We are delighted to announce that booking is now open for the annual Aortic Dissection Awareness Day, to be held in Leicester on Thursday 18th...

Aortic Specialist Nurse service launched by national patient charity

Posted on 16th January 2025

Aortic Dissection patients can now book an appointment in a virtual Aortic Specialist Nurse clinic, led by Emma Hope, as award-winning national...

DVLA agrees new guidance on driving after Aortic Dissection with national patient charity

Posted on 5th January 2025

As awareness of Aortic Dissection increases, national patient charity Aortic Dissection Awareness UK & Ireland engaged with DVLA to clarify its...

New guide to Bereavement due to Aortic Dissection for families launched

Posted on 24th November 2024

As National Grief Awareness Week (December 2–8) shines a spotlight on the challenges of navigating loss, national patient charity Aortic Dissection...

King sends greetings to national patient charity on Aortic Dissection Awareness Day

Posted on 22nd September 2024

His Majesty the King sent his best wishes to patients, relatives and clinicians from national patient charity Aortic Dissection Awareness UK &...

Aortic Dissection Awareness Day Ireland 2024

Posted on 14th August 2024

REGISTRATION NOW OPEN! We are delighted to announce the programme for the national patient charity's 3rd annual Aortic Dissection Awareness Day...

Aortic Specialist Nurse to join aortic dissection patient charity

Posted on 19th May 2024

Award-winning national patient charity Aortic Dissection Awareness UK & Ireland has announced that Emma Hope will join the charity as its Aortic...

Aortic Dissection support group welcomes 1,000th member

Posted on 3rd April 2024

Today, the national patient charity for Aortic Dissection in the UK & Ireland welcomed the 1,000th member to its AD Buddies peer support group....

Tributes paid to patient member Sharon Sewell

Posted on 22nd March 2024

A moving tribute to our patient member Sharon Sewell has been published in the Derby Telegraph following her untimely death, three years after Aortic...

Patient pioneer reunited with surgeons at national conference

Posted on 18th March 2024

Sarah Nuttman, the first UK patient to have a surgical repair of her Aorta using the new Thoracoflo™ Aortic graft from Terumo Aortic, has been...

Irish Aortic surgeon receives Patients' Choice Award

Posted on 6th February 2024

Mr. Saleem Jahangeer, Consultant Cardiothoracic Surgeon at St. James's Hospital, Dublin received the Patients' Choice Award at a hospital staff...

Award-winning patient charity launches new Aortic Dissection website

Posted on 27th November 2023

Aortic Dissection Awareness UK & Ireland, the UK's Best Specialist Patient Support Charity 2023, has launched a brand new website designed by a...

Launch of Aortic Dissection: The Patient Guide

Posted on 8th May 2022

Aortic Dissection Awareness UK & Ireland has launched, at the SCTS 2022 annual meeting in Belfast, a major new resource for patients, ‘Aortic...

First-ever patient-led abstract presented at SCTS

Posted on 10th May 2021

Today, national patient charity Aortic Dissection Awareness UK & Ireland is proud to publish the first-ever patient-led abstract accepted as a...