Aortic Dissection Awareness UK & Ireland

AORTIC DISSECTION AWARENESS

UK & IRELAND

The Patient Association for those

affected by Aortic Dissection

Aortic Dissection Awareness UK & Ireland

is the Patient Association for people affected by Aortic Dissection and their families. 

We are the voice of Aortic Dissection patients in the UK & Ireland. Our work involves raising awareness of Aortic Dissection, its diagnosis and treatment; providing vital friendship, support and advice for patients and family members; encouraging research into the condition; and working with healthcare providers to ensure that best practice diagnosis and care for Aortic Dissection are implemented consistently across the UK & Ireland.  

Membership of the Association is free to patients, relatives, and carers who have been affected by Aortic Dissection, and healthcare professionals with an interest in Aortic Dissection.

Our motto is “Today is a Good Day!

Aortic Dissection Awareness Day UK 2021

Responding to the Challenge of Acute Aortic Dissection

Date:  Thursday 16th September 2021

Hosts: The Bristol Aortic Service

Venue: M-Shed, Bristol Harbourfront

Has happened! Click to see the presentations

Aortic Dissection Awareness Day UK 2021

Responding to the Challenge of Acute Aortic Dissection

Date:  Thursday 16th September 2021

Hosts: The Bristol Aortic Service

Venue: M-Shed, Bristol Harbourfront

Has happened! Click to see the presentations

Aortic Dissection Awareness Day UK 2021

Responding to the Challenge of Acute Aortic Dissection

Date:  Thursday 16th September 2021

Hosts: The Bristol Aortic Service

Venue: M-Shed, Bristol Harbourfront

Has happened! Click to see the presentations

The regular AD Buddies UK & Ireland summer Garden Party, in 2019

Our most important activity

We are a community of people affected by Aortic Dissection providing support, advice and a shoulder for patients, carers and relatives in the UK and Ireland. Our Facebook support group settings are Private, meaning only Group Members can have input, read comments, and personal stories.  The most common first post made by a new member is “I am so glad I found you all, I no longer feel alone, thank you for your warm welcome”.  It’s a group that none of our members would wish to find necessary, but once joined they never want to leave, nor could they do without.

If you are a survivor, relative or carer affected by Aortic Dissection : 

please visit and request to join the group (click below), or reach us via our Contact page.

Diagnosis, Care and Prevention

Our THINK AORTA campaign aims to raise awareness and improve diagnosis of Aortic Dissection worldwide.  Research has shown that a diagnosis of Aortic Dissection is considered in less than half of patients who arrive at the ED with the condition and that one-third of patients with Aortic Dissection are actively treated for a different, incorrect diagnosis.  You can go directly to our THINK AORTA page.

We are also working hard across all aspects of the patient pathway, from prevention, genetics and screening, through management and aftercare of the condition, to research to advance our knowledge of AD.

See more on our many activities in these areas:

Professor Mark Callaway speaking at ADADUK19

Our annual flagship event

is the UK & Ireland “Aortic Dissection Awareness Day” – every 19th of September, providing an occasion of its own, plus an annual focus and meeting point for our many other activities (see our About page)

On AD Awareness day, countries from across the globe come together to jointly create awareness for the lethal disease of Aortic Dissection. Here we bring together patients, families, clinicians, researchers and NHS representatives from across the UK & Ireland to increase awareness, collaboration and to accelerate change and improve patient care & outcomes.

Aortic Dissection Awareness UK & Ireland is the national patient association for people affected by Aortic Dissection and their families.

Aortic Dissection Awareness Day UK is a national event to celebrate global Aortic Dissection Awareness Day (September 19th), when a worldwide movement joins forces to increase awareness of this life-threatening disease. Over 20 countries around the world host an event to mark this day.

THINK AORTA is Aortic Dissection Awareness UK & Ireland's campaign in emergency medicine

www.thinkaorta.net

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