Our members get involved in a wide range of research projects to improve the prevention of aortic dissection, diagnosis, surgical outcomes and recovery.
Over the past few years we have provided input to over 20 research projects with 14 different research institutions. Our involvement can range from requests for letters of support and patient input for grant applications, through providing patient representatives for project steering committees, or undertaking Patient & Public Involvement work as part of a study, to full collaboration as part of the research team and co-authorship of the resulting papers. Some of the research projects we are involved in are featured below.
Family Screening: The DECIDE-TAD Programme
DECIDE-TAD is our NIHR-funded strategic research partnership with the University of Leicester, looking at preventing Aortic Dissection through the...Read more
Patient Transfer: The TRAVERSING Study
The TRAVERSING study achieved a multi-disciplinary consensus on inter-hospital transfer of patients with acute aortic syndrome, which will save lives...Read more
Quality of Life After Type A Aortic Dissection Surgery: The QUADS Study
As more people survive aortic dissection, it is vital to study how we can optimise their quality of life...Read more
Computer Modelling of Aortas and Personalised Treatment: The PIONEER Programme
At UCL, a major research programme focuses on 'Engineering the Future of Aortic Surgery'. We support this with patient partnership. We made the UCL...Read more
Cardiac Surgery during the COVID-19 Pandemic: The CardiacCOVID Study
We partnered with Barts Health NHS Trust to study the impact of the COVID-19 pandemic on patients undergoing cardiac surgery during the three UK...Read more
Misdiagnosis of acute Aortic Dissection: THINK AORTA
The tragic death of Londoner Paul Sartori, 38, from a misdiagnosed aortic dissection in 2019 led to THINK AORTA working with Barts Health NHS Trust...Read more