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The Patient Charity

Aortic Dissection Awareness UK & Ireland (registered charity no. 1198617) is the national patient charity for Aortic Dissection in the UK & Ireland.

Founded by a small group of Aortic Dissection survivors in 2016, we grew rapidly to become the national patient association in 2018 and a registered charity in 2022. We are the voice of Aortic Dissection patients and their families in the UK & Ireland.

Aortic Dissection patients, relatives & surgeons celebrating our 5th birthday at the SCTS 2023 Annual Meeting


Our work involves raising awareness of Aortic Dissection; providing vital information and support for patients and families affected by the condition; working with healthcare providers to improve diagnosis & treatment and reduce healthcare inequalities; and partnering with researchers to bring forward new insights that improve future care for Aortic Dissection patients.

We measure our success by the increasing number of Aortic Dissection survivors joining our free online support network – now over 1,000 – and by the changes we see happening in the Aortic Dissection landscape. Recently, these have included:

We partner with healthcare organisations, researchers, policy-makers, industry and charities who share our vision, enabling them to access the power of the patient voice, become more patient-centred and deliver real patient benefits.

We are legally constituted as a Charitable Incorporated Organisation (CIO), with voting members other than the Trustees. Our governing document is on the Charity Commission website.