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Living Better with Marfan, Loeys-Dietz & vEDS

  • Date: 31st August 2024

Join us at this patient symposium in London hosted by our friends at the Marfan Trust and the Marfan Foundation, for a day of all things Marfan, Loeys-Dietz & vascular Ehlers-Danlos syndromes.

Living Better with Marfan, Loeys-Dietz & vEDS

Event Details

Our Chair, Marfan patient and Aortic Dissection survivor Gareth Owens, will be speaking from his personal experience about "How to self-advocate with Marfan Syndrome". Come and find out how to be your own advocate and get the care that you and your family need.

Event Information

  • Date: 31st August 2024

How to Book

Registration is free. Book directly with the Marfan Foundation.

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