Living Better with Marfan, Loeys-Dietz & vEDS
Join us at this patient symposium in London hosted by our friends at the Marfan Trust and the Marfan Foundation, for a day of all things Marfan, Loeys-Dietz & vascular Ehlers-Danlos syndromes.
Event Details
Our Chair, Marfan patient and Aortic Dissection survivor Gareth Owens, will be speaking from his personal experience about "How to self-advocate with Marfan Syndrome". Come and find out how to be your own advocate and get the care that you and your family need.